As I write this, Garren is in the middle of his second "cap trial." What that means is that his trach is capped, forcing him to breathe through his nose and mouth. Yesterday he did two hours, with no problem. Today we are going for 4 hours. So far so good. The plan is to extend the trial period a little bit each day, until they determine he doesn't need the trach anymore.
Garren also needs to learn to cough consistently, and he needs to start swallowing. When he can do that, he will be on his way to removing the trach.
Garren continues to show consistent communication with his eyes. Nancy and the therapists played 20 questions with him. At first he didn't want to play. Apparently its a dumb game and he didn't see the point (all of this was communicated through a series of yes/no questions...crazy). He finally agreed to play along, and they did it! One of the therapists left the room. Nancy and the other therapist asked Garren what thing he wanted to think about (again, yes/no questions). He went with a Gator (he was wearing a Florida Gator shirt). When the other therapist came back into the room, she asked him a series of questions (20 questions) and he answered yes or no, until she figured out he was thinking about a Florida Gator!
Later, Nancy wrote simple math problems, then held two possible answers up for him to choose. He chose the correct answer every time.
In speech therapy this morning, Wren got Garren to stick his tongue out just past his teeth. Another huge accomplishment! We are so excited to see Garren making this kind of progress. It's encouraging to see where he is compared to even 1 week ago.
A huge answer to prayer - we got the DVD with the security camera footage of Garren's incident at the school. It shows us exactly what happened, and how long it took. From the time he first complained of the headache until the time he left the school was about 30 minutes. It was pretty tough to watch, knowing the pain Garren must have been feeling, and knowing what was about to come.
We look forward to another great day tomorrow. Pray that Garren's left eye will gain strength so he can start closing it on his own. Pray that he learns to cough consistently, and to swallow.