So we worked our way into Garren's room. We gathered around his bed. "Garren, show everybody what you just showed me." Garren got a little smile on his face, and sat himself up in bed! We all laughed and celebrated together! So awesome!
Garren is getting stronger everyday. He is getting taking more coordinated steps with the walker. I hold him and keep him steady. He really focuses on taking steps. Each time we do it is stronger.
Yesterday afternoon Garren started trying to tell us something. I got the iPad out and we started spelling words. "Die." Die? What are you talking about? "I would die." You would die? Why? "...for a pb and j..." You would die for a pb and j sandwich? "YES!"
We have so much to celebrate. We also have tons of questions. How do we know when the trach can come out? We are trying to navigate our way through the maze of doctors and figure out exactly who we should be asking, and what should we be asking? It seems as if they want to do things to Garren, but they give us no future plans, no "exit" plan. It would be nice to know what the long term goals are. And how to work toward them.
In the mean time, we will just continue to work with what we do know. Garren wants to be walking in time for his semi-formal dance this Saturday. That is something we can work with. I guess I better go get Garren up so we can start working out.