Earlier this week Garren told us he doesn't like therapy. I can understand why. It's hard work. I told him he needs to look at it like football practice. Even though the coaches are hard on him, they are pushing him to help him get better. He said he feels like sometimes we expect him to do things he can't do. I explained again, that yes, it may feel like that. But we are pushing him to help him get stronger. This is the first time I have seen this kind of discouragement in Garren. It's hard.
Yesterday, someone graciously offered tickets to the Coca-Cola 600 after reading this blog, and hearing Garren's story. What a generous offer! But the more Nancy and I discussed it, we're just not sure it would be a great idea. We would be in the heat of the sun for a good 4 hours, then another four hours of dark after the sun sets. I explained this to Garren, that he would probably be uncomfortable most of the time. See, this is the harshness of his reality. He is so gracious and understanding. He said "Keep the tickets and take Kara." Then he broke down. Nancy and I did to. I put my arms around him and we hugged. These are the times I want to scream. I want to go somewhere and yell. I feel an anger deep within. I just want to make it all better! Now. I told him again: "We cannot give up, we have to fight through this. God brought this into our lives, and He has a greater purpose for it. It's hard on all of us, but we realize it's hardest on you, because it happened to you. Just don't give up."
We will continue to fight. We will prevail. We will do anything and everything in our power to get Garren the best help we can find.
Right now we are waiting on two very important phone calls. One from the speech therapist who will hopefully be able to administer the vital-stim that Garren so desperately needs to be able to learn to swallow again. The other is for a bed in rehab to open up. We did find out that there will be no beds available this week. So we will wait another week.
Thanks for your continued prayers and support.