Remember several months back, when they fitted him with a wheelchair and placed the order? By the time that one was ready he had already progressed beyond it, and now needs something completely different. Who knew there were so many kinds of wheelchairs? So they re-fitted him today for two different kinds. One is motorized. They gave him a loaner today as well. He can maneuver quite well. So far he has run over Nancy's foot once, and he has bumped into a couple of walls. He wants to get some kind of sound effect (vroom, vroom!) for when he turns it on.
We are continuing to wade through the foggy waters of speech therapy and swallowing. They have done vital stem twice. No one is sure if it is effective for Garren or not. Tomorrow they are going to do a fees test - apparently that means they put some kind of scope through his nose, so they can watch his vocal chords while he tries to swallow. Hopefully this will give them some kind of answer?? Who knows. I will continue to pray that Garren's throat and vocal chords heal.
We met another family today whose 6 year old daughter is in PICU with a ruptured AVM. Their story sounds similar to ours, the injury seems to be in a similar location. They are 11 days into their journey. They are asking all the same questions we were asking back then. I pray we can be used as a positive influence for them. Please pray for this family.